Angelman Syndrome Foundation: AI Advocate for Rare Disease Care

The Angelman Syndrome Foundation is partnering with Citizen Health to offer families access to an artificial intelligence advocate called Ari. This AI tool is designed specifically for rare disease communities. The Foundation states it is among the first to directly provide such an AI advocate to its families. Ari will help families navigate and manage complex conditions. What's interesting is that the platform aggregates medical records and assists with care coordination. Angelman syndrome is a rare neurodevelopmental disorder affecting about one in 15,000 people. The CEO of the Angelman Syndrome Foundation, Amanda Moore, whose son has the condition, says Ari will help ease the burden on parents. Families will get access to Ari at the 2026 ASF Family Conference in Denver. A phased rollout will then begin, starting in the United States and expanding globally. The bottom line is this partnership aims to make the journey easier for families facing rare disease diagnoses.